Monday, November 8, 2010

The Falling Leaves…..

Dear Family and Friends:

Winter arrived too fast for us to notice.  Two weeks ago the countryside was ablaze in orange, yellow and gold tones.  Today it stands dressed in the most austere shades of black, grey and white.  Where the wind was crisp to our faces, it is now cold.  Mornings break with frost-covered grass and leaves.  Nature is gently withdrawing into a state of deep sleep.  The hustle and bustle is gone; it’s quiet all around…. so different from what we tropical birds are used to.  And there was a light dusting of snowfall just this morning.  Brrrrrrr.  We hear that in our lovely paradise, Panama, the rains have been playing havoc up and down the Isthmus!  Yes, life and nature go on…

During these last few days, Kelly, Hector and Ani have had a fun time shopping for head gear, socks and scarves to protect themselves from the chill and wind.  Mama and Pops bought lip gloss, hand cream, vitamins and Vicks!  The Dillon family spent a quiet weekend indoors, reading, listening to music, reminiscing about favorite memories, connected to the Internet and sitting close to the kitchen stove or living room fireplace.  Yes, these tropical birds don’t have any down feathers to keep warm, we only have chattering teeth!

Tia Bea and Cousin Ernesto were occupied all weekend at a high level USTA Sectional Tournament for boys 14 years of age, held in Long Island.  Ernesto is quite an accomplished tennis player, with regional ranking.  Charlotte (16 year old cousin) is in boarding school at The Putney School in Vermont.  Tio Kurt and Tia Bea are architects and practice in both Panama and NY.  Kurt is presently in Panama until the end of the month and has just announced the publication of a book titled Gamboa.  The book is about the architecture, planning and natural landscapes of the town of Gamboa, a historical landmark on the banks of the Panama Canal and hometown of the Dillon boys and our three kids.  Kurt is presently working on a new project: an inventory of the historical buildings and structures in the city of Colon.  Colon is Mama’s hometown - she’s a Colon city gal! 

We had some close friends surprise us with a visit in Mountainville!  Sean and Ayesha were here for Fiestas Patrias and stopped by to visit on their way upstate to spend time with Ayesha’s parents.   They were having great fun playing with the GPS in their rental car. The younger generation always arrives to the USA anxious to play with the latest technological innovations, not that GPS are new, but they are still not a common thing in Panama, so it is a fun toy to tinker with when here in the USA. 

With Hector’s covert mission skills, he planned another happy moment for Kelly.  Cathy and Sebastian landed in NY last Wednesday and completely surprised Kelly, appearing in front of her while shopping at the APPLE Store in Manhattan.  There was an explosion of tears and joy as the two girls hugged and kissed.  Cathy, Sebastien, Kelly, Hector and Ani met in NYC on different occasions to spend time together and they did their share of Latin havoc to the restaurants and goody stores in the West Side on Broadway.  They visited Alice’s Tea Cup which is a famous tea house.  And while there, voila! ……Lt. Dan (Daniel Ciniglio) showed up!  Another big emotional Panama bang-up moment!   

The following day the five of them went to Serendipity for lunch.  What a magical environment, something totally out of Candy Land!  This is now Kelly’s new favorite restaurant in the entire world.  Poor Hector, looks like Serendipity’s “frozen hot chocolate” is going to be a staple item on future visits to NYC!  And to finish off the day and to complete the full sugar “poison” effect, they went next door to Dylan’s Candy Bar to smack their lips and drool at all the delightful colorful candies dating back to the 20’s.  There are literally thousands of candies in this store, but Kelly was good; she didn’t pull out the credit card!  On the other hand, Hector, our chocoholic, was having a mouth-foaming blackout!  Roahl Dahl, author of BFG  (Big Friendly Giant) and Charlie and the Chocolate Factory always talks about candies in his books in such a way that makes the reader’s mouth water , and he’d be tickled to know that there is a sweets shop in NYC to compete with the fabulous ones in his books!

The fun didn’t end in NYC, as Cathy and Sebastien drove up from the city on Saturday and spent the night. Kelly introduced them to Woodbury Commons Premium Outlet Mall, located 7 minutes down the road.  This outlet mall is a favorite spot for all visitors to NYC; there are over 200 outlet stores!  Eyes rolled and credit cards flashed!  Major damage.   For dinner, Hector cooked scrumptious barbecue steaks and the girls tossed a huge organic salad and boiled up some buttery corn on the cob.  Mmmmmm.  Even Molly and Jack (the household poochies) were lying on their backs, scratching their pansitas after dinner.  We fully enjoyed the company and good cheer!  Thanks, guys!

On Sunday morning, family and friends piled in the cars and cruised over hill and dale to Blooming Hill Market, a big barn with adjoining greenhouses tucked into a country lane in the heart of farm country.  They are open only on weekends and sell organic vegetables and fruit, homemade natural grain bread and assorted pastries.   Here we delighted in a yummy country breakfast while seated at rustic barnyard tables next to an old cast iron wood stove that crackled with piney smelling burning wood.   A couple of big Garfield lookalikes sauntered around greeting everyone and entertaining us with their purring songs.  We all agree that we need a place like this in Cerro Punta!  Lots of photos were taken and hopefully Ani will post a few.

The Dillon sisters have been trying to figure out how to bring their cats and Ani’s puppy, Kiosco, up to NY to be with them!  Today they got the bright idea that maybe it would be best just to get a kitten/puppy here and then transport him home when we return.  Ani put up an ad at the Farm House and they are hoping someone will call announcing that they have a kitten for them!  But, their bubble was popped when we found out that Tio Kurt is deathly allergic to cats.  So, that is that!  Meanwhile, at home in Balboa, poor, poor Pauline (our housekeeper) is going crazy caring for all the animals from the three Dillon households…. a total of 5 dogs, 2 cats and 6 birds!  She deserves a gold medal or at least a dozen pairs of funky soft socks!  

Good news!  Next week, Ian and Mary (our son and daughter-in-law) move back permanently to Panama!  We are so excited about this; it’s been 15 years since Ian has lived full-time in Panama.  They’ve been planning this move for many years and now finally, the time has come!  Yahooooo.

Kelly is beginning to complain that her staples are starting to feel tight…..it’s time they come out!  Tomorrow she will have them removed and feel like new again.  But, these last several hours will be slightly uncomfortable for her.  Ouch!  She’s wearing her white Russian furry beanie to keep from “popping a staple”.

Presently, we are waiting for the results of a few more pathology slides that will give the doctors more specific information about the composition of the tumor.  The investigation stage is multi-leveled: as one piece of information surfaces, then they know what to look for next… until they have a very good diagnosis of the tumor, its habits, speed of growth, sensitivity to certain chemicals, etc.   Because treatment cannot begin until Kelly’s wound is completely healed (a couple more weeks?), we thankfully have time for this careful investigation.  This recovery period also gives us time to resolve issues with the insurance company.  We all know how time consuming and frustrating insurance issues can be!


Meanwhile, we are doing a lot of reading on cancer and the recommended regimens for diet/nutrition.  Kelly will receive radiation and chemo therapies, but she also needs to supplement her diet to include the recommended nurturing foods, vitamins and minerals.  We’re going to have some very detailed blood work done on her in order to monitor her progress.  Studies show that diet and nutrition are also very important for a healthy recovery.  The literature says that brain tumors thrive on sugar, insulin, estrogen, and copper.  Kelly’s already trying to reduce her sugar intake.  You can imagine how difficult that will be!  Yup, no more frozen hot chocolate at Serendipity or visits to Dylan’s Candy Bar for the foreseeable future!

So, dear family and friends, this is what Mark and Mari’s family has been up to in Mountainville, NY these last several days.  We hope you all had a wonderful time during Fiestas Patrias week!  Our thoughts have been with you.
Thank you for all your support.  You have no idea how wonderful it is to know we have you all behind us. Truly, your words of encouragement and messages of love and friendship are the wind behind our sails!  And we ask for your continued prayers.

Kelly, Hector, Ani, Ian, Mary, Mari and Mark

Thursday, November 4, 2010

Serendipity

serendipity |ˌserənˈdipitē|nounthe occurrence and development of events by chance in a happy or beneficial way a fortunate stroke of serendipity series of small serendipities.
Last night we enjoyed the Dave Matthews Band at the Nassau Coliseum on Long Island.  The concert was a great revue of his songbook. We (thousands) all laughed, danced, clapped and sang.  Towards the end of the concert, Dave played a song that neither Kelly nor I had ever heard before: "Sister".  
For the first time since October 11, we held each other tight and cried, just like that not-so-distant day when Kelly was first diagnosed with a brain tumor. Only it was different last night; our tears were of pure joy and happiness, love and compassion.  We truly depend upon one another!

" ... I had a younger sister and when we were little kids we used to say that somehow when she was born her heart ended up in my chest and my heart ended up in hers." - Dave Mathews

"Sister"

Pass the time with you in mind
It's a rather quiet night
Feel the ground against my back
Counting stars against the black
Thinking bout another day
Wishing I was far away
Whether they were dreams or worries
You were there with me

Sister, I hear you laugh
My heart fills full up
Keep me please
Sister, when you cry
I feel your tears running down my face
Sister, Sister keep me

I hope you always know its true
I would never make it through
We could make the sun go down
Just by walking away
Playing like we used to play
Our kingdom will never go away
Feel you beating in my chest
I'll be dead without
Sister, I hear you laugh
My heart fills full up
Keep me please
Sister, when you cry
I feel your tears running down my face
Sister, Sister will you keep me?

I would never make it through
Hope you always know its true
You could make the heaven's fall
Just by walking away

Sister, I hear you laugh
My heart fills full up
Keep me please
Sister, when you cry
I feel your tears running down my face
Sister, Sister keep me 


The reason for this post's title, "Serendipity", is self-evident: "Sister" came at the right time and under the right circumstances, bringing a happy confirmation of our love for one another.

Love, Ani

Wednesday, November 3, 2010

PEACE LOVE & HAPPINESS

Onward...with a smile :)

Tuesday, November 2, 2010

One Week Later...

A note from Mama and Pops:

Hello Family and Friends,
This weekend we spent a lovely time with family, basking in this wonderful mountain air while bundled up in lots of woolies to keep warm.  The skies have been radiant blue and the sun brilliant, causing the fall colors to be so spectacular.  The family has enjoyed raucous meals around kitchen and dining room tables, enjoying hot apple cider, hot biscuits dipped in butter and honey, scrumptious apple pies and varied wines.  Everyone enjoyed carving funny-looking pumpkins, filling them with candlelight and placing them on the stone fence along the dark country lane to add to the Fall festivities.
Today we enter the next stage of Kelly’s journey and ask for your continued and fervent prayers.  
This morning Rabbi Goldwasser called to give us an initial update on the pathology report and the Brain Tumor Consulting Team of the Presbyterian Hospital met later in the day to review Kelly’s case.  Their current conclusion is that Kelly’s tumor contains a mixture of oligodendro, astrocytoma and neuronal components, making for an aggressive cancer.  The Consulting Team will forward us more specific details and recommendations.
In the meantime, we have processed an authorization allowing the hospital to release the MRI and pathology reports, which we will take across the street to Memorial Sloan-Kettering Cancer Center for a second and third analyses by both their leading neuro-pathologist and neuro-oncologist.
The cancer currently diagnosed is graded as a Type 3, and approaching a Type 4 (cancers are rated 1-4 in terms of malignancy, 4 being the high end).  Kelly will probably undergo both radiation and chemo therapies.  We do not know how long Kelly will need to undergo therapy or any other details of her upcoming treatment.  At this point we are unsure whether we will return to Panama briefly or remain in the U.S.  Of course, first Kelly must fully recover from her surgery so that she begins any subsequent therapies at her maximum physical strength.  In fact, that part of her recovery is apparently well advanced, exceeding all expectations.
Yesterday Dr. Stieg’s assistant Amanda, called to ask Kelly how she was doing.  She asked her if she had any headaches? No... fever? No.... Dizziness? No.... Nausea? No ...other symptoms? No.  I heard Kelly say, “Yup, I’m feeling great!  Just can’t move my head too fast ‘cuz I get a woozy feeling.”  Amanda told Kelly that her recovery was a medical marvel.  They had never had a patient undergo brain surgery and not show any signs of discomfort.
Today the incision on Kelly’s head looks completely sealed.  It’s the cleanest looking surgery that any of us have ever seen.  And she now wears her hair combed back naturally - showing only a tiny trace of the cut near her ear.  The temperature has dropped the last two nights, leaving frost behind in the mornings.  Last night Kelly came in from outside and as she was peeling her coat off she made the comment, “Wow, it’s so cold out there, I actually feel my staples...they feel like they’re frozen!”
Cancer is a strange disease; each case is different and each patient responds differently.  We must not allow ourselves to fall into the trap of gauging Kelly’s path by Internet reports of past cases.  Cancer brings its struggles and its hard moments, just like any virulent disease.  It requires a lot of courage to face the day-to-day treatments and that comes from a strong positive attitude.  When we gave Kelly the news from pathology this morning, she looked at us and said, “Well, we will do what we have to do.  I was prepared for this ever since Dr. Stieg said in our first meeting that the need for follow-on radiation would be possible.”  We wouldn’t have expected her to give any other kind of response, right?!  This is a true Kelly common sense statement.  She is a strong girl and with your continued positive support, Kelly will come through this the same way she came through the brain tumor operation...with flying colors! 
So, we leave you today with this latest information and ask for your continued prayers and positive vibes.  We will keep you informed via the blog as further information becomes available. 
Mari and Mark

Saturday, October 30, 2010

A Thousand Smiles

A post from Pops:

Last Sunday we attended Mass at a small neighborhood church in Cornwall, N.Y.  As providence would have it, the Gospel reading included this passage from St. Paul:

            I have competed well
            I have finished the race
            I have kept the faith

While Paul’s entire message speaks of the great difficulty of maintaining an enduring faith, the same progression of spirit is certainly needed to endure an illness.  And what is the reward for such dedication of purpose?  For us, the prize has been the greatest of blessings: Kelly’s apparent return to good health.  And so we continue to pray with increased confidence for others, like young Peter Marotta and beautiful Nikki Meyer and their families, that they too will experience the joy of God’s grace and a return to good health.

Friday, October 29, 2010

"Living It, Loving It, Sunday Riding"

Check out this great video filmed by Kelly's friend Blake a couple of years ago in Jax! The whole family was laughing this morning, watching Kelly enjoying a good ol' time...especially at the end!

http://www.youtube.com/watch?v=48mipLpzZmk

Thursday, October 28, 2010

Up, Up and Away!

Tonight's update from Mom:


   Since early this morning family and friends have been flowing in and out of Kelly’s hospital room bringing laughter, good cheer, flowers (including the strangest BRAIN flowers from France) and yummy goodies (Magnolia Bakery cupcakes and chocolate-dipped cherries!)  It has been quite an eventful day.
   Now that the storm has passed, we have time to reflect on one of our biggest blessings: finding the best neurovascular surgeon in the world to perform Kelly’s operation, Dr. Philip Stieg. His hands were guided by God.  How can we ever thank him for bringing Kelly through this delicate operation with such success? We will remember him forever!  If any of you ever needs a neurovascular surgeon, he’s the man!
   Kelly had her post-op MRI early this morning before we arrived.  Dr. Stieg reported this afternoon that the MRI came out fine (we will submit MRI and biopsy results to a few recommended oncologists for second opinions). He also announced that all her vital signs are normal and the leakage from the brain has diminished considerably, allowing him to approve her discharge tomorrow!  Yahoooooooooooo........
   After Dr. Stieg left, a skillful medical practitioner removed her head bandages and drain tube (Ani’s got it all on a video)!  We were so surprised at how little of her hair had been shaved and how clean and neat the cut was stapled.  It literally looks like she has a thin headband on her head.  It’s just incredible how the body adjusts to a major surgery and begins to mend so quickly when it is in the hands of experts.  
   So, the plan is that the Dillon’s will head back to Mountainville tomorrow and the wonderful hospitality of Tio Kurt, Tia Bea and our young cousins, Charlotte and Ernesto.  On November 9, Kelly returns to Dr. Stieg’s office to have the staples removed.  On November 10, 2010 we fly home to Panama!  Next week we receive critical info from pathology to determine whether or not she will need radiation. If necessary, our return date to Panama may change.
   If you ask Kelly, the highlight of today (aside from the meals prepared by her personal chef) was being able to wash her hair!!!!  The little pleasures of life!

~Mari